Archive for the chronic illness Category

Another year over, a new one just begun….

Posted in chronic illness, death, depression, hope, mental health, mental illness, self destruction, self harm, suicide with tags , , , , , , , , on 29/12/2015 by doyourememberthattime

I burnt the suicide notes I had prepared. 

Things are not great. 

Paranoia is at an all time high

But

I am going to do 2016.

That’s a start. 

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i’ve lost control again…

Posted in chronic illness, depression, self harm with tags , , , , , , , , , on 19/11/2014 by doyourememberthattime

i’m ill
oh, i know, i’m always ill
but it usually ebbs & flows.
i get some respite
i used to have days when i felt i like a normal person
not
anymore.

i’ve been sick every day for months
i’m exhausted
i ache, everywhere
i threw up
a lot.

my body has decided that i am no longer permitted to eat
my weight is plummeting
and
i have no control.

I HAVE NO CONTROL

as a result, i have shut down
because i cannot function without control
with every pound i lose
i feel like my actual self is diminshing
i am just fading away.

i rarely leave the house
i barely move at all
i can’t function
i can’t write
i can’t even cut with any efficacy.

i lack the strength or energy to assert dominance with a scapel
which means i’m lost.
i have to lie down to it
i don’t have any other options.

novocaine for the soul…

Posted in chronic illness, mental illness, self harm with tags , , , , , , , , on 12/08/2014 by doyourememberthattime

I’ve been really ill. I have a virus that my compromised immune system cannot fight off. This virus is kicking my arse. I am constantly exhausted, everything aches, dizzy, cold, nauseous, the works. This has been going on for weeks & I’m at the end of my tether.
Enter, self-harm.
I think perhaps feeling so helpless played a part, but mostly I don’t know what happened.
One cut turned into two turned into me practically dissecting my entire left arm.
I don’t feel anything.
There is no relief
It doesn’t feel right
Or wrong.
Yet, I feel compelled to continue.

The voice in my head that pushes me hurt myself has taken over
It’s not the same voice.
There is no emotional involvement
It is simply an obligation I must meet
I am measuring blood loss
When I reach my target, I may stop.
I don’t know what is happening.
But
I am not afraid.
I feel still.

i’ve looked at life from both sides now…

Posted in children, chronic illness, family, motherhood with tags , , , , , , , , , , , , , , on 11/07/2014 by doyourememberthattime

i have written about my longing for children before.
i’ve known i want a family for a very long time. it has just never been possible.
i was too young
or
too sick
or
too single
i did always mostly believe it would happen.

that hope has been waning for a few years now.
i am 33 years old.
reproductively challenged
single
i have a history or mental & physical health problems
i am certainly not wealthy
the odds are stacked against me.

the desire does not lesson.
as everyone around me begins to start a family
(even those who didn’t think they wanted to)
i feel i am running out of time.
and
i’m scared.

i know i am just another woman with a ticking biological clock
nothing unique
or possibly even interesting in my situation.
the unoriginality of my problem does not diminish the pain.

i find myself increasingly obsessing over my options.
a solution has not presented itself.
i don’t want to imagine my life without little ones of my own
but
i can’t envisage a way to make my family happen.

i have no idea where this post is going
i’ve become so overwhelmed with the gap between my needs & my reality that it has just spilt out.
i am bursting with maternal instinct.
i’m ready.
i am so ready.

don’t patronise me….

Posted in chronic illness, depression, mental health, mental illness with tags , , , , , , , , , on 14/06/2014 by doyourememberthattime

I didn’t sleep last night. I’ve been in a fair bit of pain & my stomach hasn’t been behaving. My mood hasn’t really been behaving either. It took a dive earlier in the week for unspecified reasons. Perhaps feeling so sick has had an impact or maybe it’s just my head being a dick. Who can say?

On account of the above I slept late. Dragging myself out of bed was a struggle, but I did it. Mainly because I am currently dog sitting & no matter how shit I feel, not walking a dog is cruel. So, up I got, flung on whatever clothes were lying on the bedroom floor, brushed my teeth & took that pup for the longest walk I could manage. I did these not because they would lift my mood. Nor did I do them as part of an ‘action plan’. I didn’t derive any sense of achievement. They needed to be done, so I did them.

Later, my stomach had calmed down. I hadn’t eaten all day & was hungry. My fridge contained half an aubergine that had to be used today or it would only be fit for the bin. These factors combined led to me make some vegetable moussaka. I didn’t cook because it would make me feel that I was worth taking care of. I simply used the ingredients available to feed myself because otherwise, I would not eat.

I tell you these things not because they are interesting. I certainly don’t mention them because I want applause. I merely draw your attention to these mundane activities as they are the reality of day to day life.

THEY ARE NOT SELF CARE.

Mental health organisations & patronising individuals are constantly spouting the merits of self-care. I am so tired of hearing this bullshit. Everything I do does not have a therapeutic purpose. Mental illness (or for that matter physical) does not define me. I am a single woman living alone. There are always tasks that need taken care of. I take each day as it comes & do as much as I can manage. That’s just survival. In that respect I am no different from anyone else.

Obviously my illness can make simple jobs difficult. Things the average person may take for granted come harder to me. That doesn’t change the nature of life. I either keep living to best of my ability or I lie down and die.
To label each chore or treat self-care is to rob me of my basic humanity. I am no longer a person, but a collection of diagnoses. Mental illness becomes my defining feature. I strenuously reject that characterisation. To measure my wellbeing by how many dishes are in my sink is insulting. Similarly, to minimise serious conditions by suggesting a nice dinner will make it all better is also offensive.

I live my life as fully as possibly. I enjoy whatever I can and try my best to endure the rest. Doesn’t that sum up most people’s experience? I don’t hear anyone congratulating ‘non-mentals’ for continuing to exist, so why are they patronising me?

I’ve looked at life from both sides now….

Posted in chronic illness, depression, mental health, mental illness, self harm with tags , , , , , , , , , , , on 09/06/2014 by doyourememberthattime

I haven’t written in a while. I’m not entirely sure why that is. I seem able to write other more frivolous things, but any deep introspection eludes me.
I am volunteering again. A project I really believe in. it gives me a sense of purpose. I know I shouldn’t need to find worth outside of myself, but I do. I suspect if they were honest, most folk have a similar struggle for validity.

My body continues to malfunction in a variety of ways. Planning is redundant. Where I can go & what I do is ruled by my ability to manage symptoms. I am the queen of cancelling. I am so tired of disappointing others & myself.

My head is a mystery to me. There are days when I feel I am making huge leaps. Future aspirations bloom, hope is palpable. And then for no concrete reason I plummet. Days seeped in grey merge into one another. Life becomes a featureless landscape of withdrawal or a frenzy of anxiety.

Self-harm is never far from my thoughts. I am not actively hurting myself, but I still believe that is the true me. I am forever searching for a way to hurt enough & still function. I can’t begin to find the words to describe how it feels to daily fight your most ingrained instincts. In so many ways I am broken, I honestly don’t know if the damage is irrevocable.

everyday is silent & grey….

Posted in chronic illness, mental health, Uncategorized with tags , , , , , , , , , , , , , , , , , , on 05/03/2014 by doyourememberthattime

I had a gastroscopy yesterday. I’ve had one before and whilst it was unpleasant, it was fairly straight forward. Yesterday’s procedure did not go so well. For whatever reason my body didn’t tolerate the procedure well. It became a painful and frightening experience.
I’m ok.
They didn’t find anything life threatening, just further deterioration of my existing conditions. I’m sore and tired, but there is no lasting damage.
So, why do I feel so awful?
It feels pathetic to admit this
But
It’s because I’m alone.
It would be so nice to have someone to hold my hand through these times. I don’t want to complain because I know I am lucky in lots of ways. I have friends and family who love me. I am grateful for all the help they give me. The truth is there is only so much I can ask of them. They have partners, responsibilities, lives. Hence, most of the time, I am on my own with this.
And it is lonely.
Spending days trapped in my house (&my head) without any human contact. Being ill limits what I can do so much. Pain can override my ability to even read or watch a film. This leaves me alone with my thoughts.
Thoughts that can quickly spiral into dangerous places.
Hope easily slips away when you’re struggling to get out of bed. It feels like my physical health will never improve & that hammers away at any progress I make with my mental health. Reclaiming my life gets further away with each flare up & new diagnosis.
I suppose this post is mostly about me feeling sorry for myself. I’m scared that the life I want is simply not possible now. I’m not sure that anyone in my life really understands how I isolated I am. Nor do I know how to talk about these feelings.
I’m pouring it out here in an attempt to feel maybe even little less alone.